Advocacy Toolkit

YOUR VOICE MATTERS

Staff shortages, waitlists, and outdated rules keep people with IDD and families from essential supports. Your advocacy drives solutions that work together—modern med support, recognition of family caregivers, fair DSP pay, 24/7 behavioral health via CCO+, and real housing choice—so people can live safely and independently. Raise your voice today.

PLEASE TAKE 60 SECONDS TO JOIN OUR ONE CLICK CAMPAIGN - PROTECT CARE COORDINATION!

Care Coordination Organizations (CCOs) connect people with IDD and their families to essential community health and human services. Reinstating CCOs in this year’s Human Services Targeted Inflationary Increase (targeted COLA) is essential to maintain a stable workforce and protect continuity of care.

For the past 2 years, CCOs have been left out of the Targeted Inflationary Increase, despite facing the same inflationary pressures as other human services providers. Restoring CCO inclusion will help agencies retain experienced care managers and address rising operating costs, so people and families keep getting the support they rely on.

Please take 60 seconds: use our One‑Click tool to email your legislators, then share widely.

This One Click will send a letter to your local elected officials, urging them to:

  1. Reinstate CCOs in the Human Services Targeted Inflationary Increase (COLA)
  2. Modernize Medication Administration – Pass legislation (A.7284/S.6334) to allow trained DSPs to administer routine medications and related tasks in non-facility settings, with strong safeguards.
  3. Establish a Medicaid pathway to train and compensate eligible family caregivers providing in‑home support for their loved ones with IDD.

JOIN OUR
DISABILITY ADVOCACY WORKGROUP.

Your experience as a self-advocate, family member, or IDD professional is valuable. Help us advocate for a more accessible and person-centered system!

Together we will:

  • Discuss how systems of care can be improved
  • Learn how to effectively communicate needs to lawmakers
  • Create your advocacy plan of action

MAKE YOUR VOICE PART OF THE CHANGE.
JOIN MFAC TODAY!

Joining the Member and Family Advisory Council (MFAC) is an opportunity to transform your lived experience into meaningful progress for people with intellectual and developmental disabilities.

By sharing your voice, your story, and your ideas, you help shape policies, strengthen person‑centered care, and guide the future of services across New York State. MFAC is more than a council—it’s a community of advocates and leaders working together to ensure every person with IDD is heard, valued, and supported.

SHARE YOUR STORY.
WE WANT TO HEAR
FROM YOU!

We use real stories to guide our policy priorities and to educate legislators. Whether it’s about getting the right supports, crisis points, inclusive education, employment, housing, or care coordination—your experience can lead to change.

You choose how your story is used and how your name appears. Sharing is voluntary, and you can stop at any time.

We want to hear from you!

嚟緊嘅活動

三月,行軍 6, 2026 at 10 AM

Hosted by NYDA/IAC

Intended for NYC based members, families, providers, CCO staff and public

NYDA rally march 10, 2026 at 11:30 am in the war room at the ny state capitol building

NYDA Rally at the Capitol Building

三月,行軍 10, 2026 at 11:30 AM

Hosted by NYDA

Intended for any HCBS Waiver recipients, members, families, providers, CCO staff and public

Held in the NY State Capitol Building War Room – 2nd Floor

#InvestInUs – wear orange!

RALLY CONTACT EMAIL: Info@NYSDisabilityAdvocates.org

Long Island Rally

三月,行軍 13, 2026 at 11 AM

Please join us for the Long Island Rally at the Brentwood State Park North Entrance – Community College Drive, as we come together to make our voices heard and show strong support for critical funding in the New York State Budget.

Show Lawmakers you support investment in the I/DD service sector.
(For GPS, use Crooked Hill Road and drive to the North Entrance next to the College.)

Please help to spread the word. Please bring as many colleagues, families, and community members as possible. The more people we have, the stronger our message.

Make signs, Our Message: “Invest in Us” “Invest in Me” “We Support our CareForce” “Support our CareForce”

Thank you for your patience as we finalized this new location after losing our previous site.

Rally in the Valley 2026

三月,行軍 13, 2026 at 11 AM

Join the rally on 星期五, 三月,行軍 13th at 11 AM at the Rockland Community College Fieldhouse in Suffern, NY!

Stand together for affordability, dignity, and investment in disability, mental health, and long‑term care services. Bring your signs and your voice. Let’s make an impact!